Name of the Procedure:

End-Stage Renal Disease (ESRD) Services Monthly (For patients aged 12-19)

Summary

This procedure involves monthly healthcare services for adolescents with end-stage renal disease (ESRD). It includes monitoring nutritional adequacy, assessing growth and development, and counseling parents. The service entails at least one face-to-face visit with a physician or other healthcare provider every month.

Purpose

The procedure addresses the ongoing medical needs of adolescents with ESRD to ensure they receive comprehensive care. The primary goals are to:

• Monitor and manage nutritional intake.
• Assess and support growth and developmental progress.
• Provide essential counseling and support to parents.

Indications

• Diagnosed end-stage renal disease (ESRD) in patients aged 12-19.
• Need for regular monitoring and adjustment of nutritional, growth, and developmental parameters.
• Requirement for ongoing parental counseling and support.

Preparation

• No specific pre-procedure preparations are typically required.
• Patients should maintain their usual dietary and medication routines unless directed otherwise.
• Routine blood tests and/or other diagnostic assessments may be conducted beforehand to provide up-to-date medical information.

Procedure Description

1. Initial Assessment: A comprehensive review of the patient's medical history, current symptoms, and any recent blood work results.
2. Nutritional Monitoring: Evaluation of dietary intake and nutritional status, potentially involving blood tests to check for vitamin, mineral, and electrolyte levels.
3. Growth and Development Assessment: Measurement of height, weight, and developmental milestones to track progress and identify any concerns.
4. Counseling Session: A face-to-face meeting between the healthcare provider, the patient, and the parents to discuss findings, offer advice, and address any concerns or questions.

Duration

Each face-to-face visit typically lasts about 30-60 minutes.

Setting

The procedure is usually performed in an outpatient clinic or a specialized nephrology center.

Personnel

• Physician (often a pediatric nephrologist)
• Nurses
• Dietitians
• Social workers or counselors (optional, for additional support)

Risks and Complications

• Minimal risks associated with the assessments and counseling.
• Blood draws or other diagnostic tests may involve minor discomfort or bruising.

Benefits

• Improved nutritional status, growth, and overall well-being.
• Early detection and management of potential health issues.
• Enhanced understanding and support for parents.

Recovery

• No significant recovery period needed.
• Patients can usually resume normal activities immediately after the visit.
• Follow-up visits are scheduled monthly.

Alternatives

• Less frequent monitoring or remote consultations might be considered but may not provide as comprehensive oversight.
• Alternative forms of parental support (e.g., online forums or support groups).

Patient Experience

During the procedure, patients may experience:

• Minor discomfort from blood draws or physical measurements.
• Emotional support and reassurance from healthcare providers.
• Greater confidence and understanding from the information and counseling provided. Pain management measures are generally not required for this non-invasive procedure.